Supporting Research, Education, and Treatment of PANDAS in Adolescents and Young Adults
Alexandra “Alex” Coulter Manfull – prolific writer, voracious reader, artist, photographer, New York Times crossword whiz, television/film buff, fashionista, runner, financial analyst, dear friend to many, and daughter extraordinaire — died Tuesday, August 7, 2018 in Washington, D.C.
Alex’s life, especially in her last years when she battled the debilitating symptoms of PANDAS, is a testament to her strength of spirit and character. The harsh reality is that there are only a handful of physicians and researchers who are even aware of PANDAS and most health insurance companies do not pay for treatment. Alex was fortunate and persevering enough to connect with one of the best physicians in the country — not everyone even knows how to begin such a search. It is urgent that this situation changes.
Alex told us that as soon as she was well, she intended to educate everyone about PANDAS. The Alex Manfull Memorial Fund supporting Research, Education, and Treatment of PANDAS in Adolescents and Young Adults has been established in the hope that other young adults, as well as children and adolescents, shall have greater treatment options and that never again will another life be cut short due to PANDAS.
The Alex Manfull Memorial Fund is part of PANDAS Network, a 501 (c)(3) non-profit corporation. All donations are tax deductible as allowed by law – EIN #37-1666562
Prefer to mail your donation? Print out the PANDAS Network Donation Sheet and mail with a check to:
PANDAS Network/Alex Manfull Fund
655 Oak Grove Avenue #1373
Menlo Park, CA 94026
Thank you for your support!